I have been away for quite some time and I can't really explain why. I had yet another flare up and was on steroids. For some reason the steroids really messed with my mind set this time. They always warn it can do that but all those time I was on it for previous flares, I never really experienced it until now. It made feel like I was a different person. My emotions were a bit off and I just didn't feel myself. I couldn't focus or keep a train of thought. I couldn't organize daily tasks and believe me I am usually always excellent at my organizational skills. I was constantly distracted and didn't want to deal with my responsibilities. It made me stray off my path, the path I feel was laid out for me. Hopefully, I am returning to my path.
Yes, I am still working on the book. Genius takes time. HaHa! I didn't write for a while. For some reason I had no desire to pick up a pen and put it to paper. Maybe it was because I felt sick and tired of dealing with my illness. I felt like I wasn't Lisa anymore, I was my illness. The book just was a reminder of that. But I am back at it.
At my most recent visit to the neurologist, after MRI and bloodwork, another diagnosis was either added or changed. I am atypical MS. Meaning not a normal MS patient with the normal MS. When did anything with MS become normal? I was diagnosed with Neuromelyitis Optica: As known as NMO or Devic's Syndrome/Disease. I rather say syndrome. I hate using the work disease. Make me feel contagious and dirty. I no longer take daily injections, Thank God. But now I am on a med, pilkl form, that is used for organ receiptants so they don't reject the new organ. There is some serious side effects such as lymphoma that scares me. IT lowers your white blood cells and mine are high. You would normally think that was a good thing to fight off infection. Unfortunately, in my case it is attacking my own healthy bodily parts. So the new med makes sense to me so I am hopeful it will work. I just need to stay away from sick people since it will lower my resistance. That's ok, I don't want to be around them anyway. HaHa!.
I hope you forgive me for my absence and are still looking forward to the release of my book.
I would love to hear any feedback or comments of anything you guys are going through that is difficult or sometimes seems unbearable. We all have a cross to bear, I just wish mine wasn't so heavy.