I apologize sincerely for being M.I.A. for such a long period of time. I had yet another flare up before Christmas which has left some decreased mobility in my left hand. Since I am left handed it has become increasingly difficult to write or type. I finished my blast of I.V . steroids and on oral tapers now. Still the awkard tight feeling is there. The only way I can describe it is that my fingers feel like rubber bands stretched to their max tension. My neurologist is aware and when I go back to him he is probably going to change my meds to the Tysarbi infusion. This scares me quite a bit considering I did test positive for that JC virus, which is a common thing, but increases the risk for a brain infection. But having six flare ups in one year is not good also so they will monitor me closely.
Also, on a differentn note, my father's health has decreased rapidly. He is on hospice care at home. My mother took a leave from work to care for him. My sister and I are there almost constantly to help with his care. It kills me to see this once vibrant and strong man to be so weak and bed ridden. I know he doesn't want to live like this but he is clinging on because he worries about us. That's just how he his. We tell him constantly we will be ok. But he is such a loving and devoted family man that I think he still worries.
I know everyone has their cross to bear but mine has become so heavy I feel crushed under its weight and barely able to get up. I am so tired of falling down and getting bak up. I am fearful the damage in my hand will be permanent. I am fearful of losing my father. I just pray for strength and relief.